Friday, 16 January 2009

Big day today..

4:18am, not a lot of sleep again but I'm trying to be more disciplined about getting out of this living room and going back to bed for a few more hours sleep.

Today's going to be pretty epic. Get to the hospital for midday for:

1 ) Ambisone
2 ) Bone Marrow test
3 ) (possibly) another intrathecal
4 ) an hour drip

Looks like another 7 hour session so I'm gonna get a taxi down there.. and make sure I cook myself a big pasta salad to take with me and don't forget a fork this time.

To be honest, I'm kinda nervous, it's a lot of treatment but I really want those results from the bone marrow. From talking to Jenny the results of this bone marrow really determine my treatment for the next month or more and I'll find out exactly how much my counts have recovered.

Big day, I'll write more later.

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It turned out I only had the ambisone and some IT Chemo today, the bone marrow needs to be taken straight to the lab and tested so trying to do it on a friday afternoon wasn't going to happen.  So I've got the bone marrow test on monday but my blood counts are really good so we're going to go ahead and change around some of my drugs.

As of now I get to start taking less and less of the dexamathosone (the steroids), which is brilliant, and on sunday I have to start taking the Mercaptopurine.

I'm headed back home this weekend to see my family and my friends so should be a good weekend! Feeling pretty good, the sickness has been calming down and I've got some other pills that should help anyway.

Right, I better get some more sleep, busy day ahead :)