Since coming off the gut steroid Budesonide I've been feeling a bit rough, lot of nausea and stomach cramps as though I'm full all the time but I've hardly been eating; at least not anywhere near as much as I normally do. The Doctors were worried it was the graft vs host in my gut coming back but it looks like its just side-effects from the steroids, they took a sample off me and as far as I'm aware that came back fine. At least I've actually been feeling hungry for the first time in ages, even though theres not a lot I want to eat.
The most worrying thing happened the the other day, I woke up and the vision in my right eye had a great big dark patch over it and was just totally blurry. I didn't think much of it at the time because I tend to get blurry vision when I'm tired but it persisted for 2 more days so I called it in on Sunday and went in to Hospital for a review. The registrar there thought that it might be CMV virus behind the eye but decided that I need to see an Optomotrist for a specialist opinion, if it was the CMV then I'd be admitted and put on the Phosgarnate (a nasty drug that wrecks my kidneys). So I went down to the eye hospital and saw the Doctor there and she wasn't quite convinced it was CMV since it's come on so quickly so I was spared Hospital admission for the night and told to come back tomorrow to see a consultant who was more experienced. I had 4 people look in my eye and they all concluded it wasn't CMV, which was good news, and that it was a bleed in the back of my eye since my platelets have been sitting so low recently. This spares me sleeping at hospital and having nasty drug, but it does mean I have to go in every day for a blood check to see what my platelets are. That's a bit of a bitch seeing as this week I have a Physio appointment AND my University registration but hopefully I can work it round all that somehow.
So yeah I was pretty worried, especially when the Doctor told me if it is CMV then the scar left behind would probably mean my vision was buggered for good. Hopefully that's not the case with just a bleed but they did say it could days or months for my vision to returns to normal.
