odd few weeks

Updates have been pretty few and far between on here I appreciate, for a couple weeks I've just felt pretty terrible. Not just with headaches and tiredness but its just seemed like things have been piling up more and more and there was no end to it really with test results, stastics, side effects etc.

Still, since I was admitted to hospital Monday the 9th I started to feel a lot better. I was in for two weeks all in all, first with a line infection and then with a cold. Luckily though I managed to get out for Valentines Day and spend it with my girlfriend, shame I was straight back in to hospital the next day! But still it was a great day. To be honest other than having a temperature I felt find in hospital really, I really wish I'd used the time more productively and got on with some work when I was feeling good but unfortunately my tutor's such a moron he's put some of the necessary parts of our assignment on our University computers... where I can't get them. Lucky I'm good friends with my year otherwise I wouldn't be able to do the assignment full stop, honestly the man's an idiot. I went to see him the other day to explain my situation to him and he was asleep in his office.... I mean for god's sake you've only got to work a few months of the year as a University tutor, least you can do it be awake at work.... prat.

This weeks been a recovery week luckily no chemo, though I've been feeling quite tired I think thats more due to not getting much sleep either being too hot or too cold at night rather than being short on haemoglobin, hopefully my counts have been going up this week, I haven't been keeping much of an eye on it all recently.

My first week of hospital has put me right off hospital food, I think I only liked it last time because I was on those steroids and would of eaten anything. So I managed to lose 3kg that week thanks to dishes like baked bean and corn beef hash... yum... Therefore the second week in hospital I made sure that I went out for lunch every single day with whoever was visiting me, had a few damn fine pizza's and the rest of time I scoffed sandwiches or chocolate.

I had another bone marrow test monday, so I'm due an assessment friday to find out exactly what my next course of treatment will be. Chances are I'll be back on the cyclo and cytarabine again, but hopefully not, may even start my radiotherapy but we'll see. Looks like we'll be paying for the palerfermin (drug that helps with the mouth sores during the transplant) ourselves since the NHS and my medical insurer refuse to pay for it. Still my insurer owes me £2,000 for in-patients stays so that should go quite far too covering it anyway hopefully, still need to find out exactly how much it is.

Been a little while

Well I haven't done this for a while so I thought I better get to it, I've had a pretty rough week or so with symptoms and the like, I've been feeling much better since sunday afternoon though. Ironically, even though I feel right I am back staying at hospital again at the moment since they're a bit worried about my temperature and some other things, worried I may have caught something but my temperatures gone down so hopefully I won't have to stay here the full 5 days they normally keep people in for.

They were pretty concerned by the headaches I'd been getting, obviously they'd seen something on the MRI scan that didn't look quite right and the possibility of Arachnoiditis was raised. Looks more like however that theres been some kind of leak from the lumbar punctures and it must be healing up now because I haven't had any for a while now.

I'm getting pretty sick of having to come in to hospital every day, if anything I probably wouldn't mind being admitted the whole week and just going home at the weekends, at least then you dont have to get somebody to take you in and out and then sit in that day area for 7 hours or so. Still, I don't have any cytarabine this week so hopefully I should get Thursday too myself, that's if I get out of Hospital before then!