Day +172: There's always something

Well after all the tests they gave me to find out what was wrong with my stomach they all came back fine, I even had an endoscopy where they put a camera down your throat and take biopsies of inside your gut in various places, that's not something I'd want to go through again any time soon. I know I've had bone marrow and spinal fluid sucked out of me but I'm just not crazy about having thick black cables forced down my throat.

Anyway all the tests I had came back fine and the Doctor's concluded that I'm suffering from Irritable Bowel Syndrome and chances are it'l clear up in a few more weeks. The better news though is that I've started coming off the cyclospirin and in a couple of weeks time I should be off it completely so my immune system won't be supressed anymore. On top of that I only have to go in to Hospital once a week now which is cracking. The Doctor told me to start hitting the exercise hard as well and I really want to, its just without getting enough food down me I'm still feeling sick and tired a lot of the time making it pretty difficult. Hopefuly that'l pass soon enough through.

Also I've had a chance to give my new immune system a work out by getting a pretty nasty throat infection, they've given me a ton of oral anti-biotics though and its mostly cleared up now but it's been a pretty rubbish few days only being able to swallow ice cream and water. I'm a little worried about how much weight I've lost over the last few weeks, I'm down to about 9 stone 5 pounds now and for somebody my height thats pretty low, still hopefully my appetite will pick up pretty soon because I'm REALLY missing eating out.

Day +151: Somebody find out what's wrong me already...

Well I've spent a few more weeks feeling absolutely rotten; nausea, abdominal pain, back pain, mouth ulcers and on top of that my eye's still blurry. I've had pretty much every test they could think of, my consultant was worried it was a relapse of leukaemia with the back pain and everything so I've had a Bone Marrow test and a Lumber Puncture and spent a few days pretty worried but both the results came back totally clear. On top of that my X-ray and MRI scan were clear as well so its looking like it might be the Graft vs. Host of the gut again, which just means going back on the Budesonide. It's a bit of a step backwards but still it's not that bad, the Budesonide doesn't affect me really, but they have to confirm thats what it is first before I go back on it. Which means a few more days waiting for results and feeling crap. I've missed a couple of my lectures already and my physio has just gone out the window because I feel so rubbish, but I suppose its best this happens now rather than later on in the year when assignments start pouring in.

All in all though I'd much rather feel like this than have all the mental affects of the steroids which, by the way, have finally worn off. I'm not feeling anxious or depressed anymore and I can concentrate fine, so even if I miss a lecture or tutorial I can catch up.

Still I wish they'd get on and give me this endoscopy so they can figure out what's wrong with me.