Well it's been a rough few weeks with, initially I went in to hospital to have the phosgarnate to sort out my CMV virus but that ended up wrecking my kidneys and keeping me in a while even though what little I had seemed to have done quite well with the virus counts. From that point I was was waylaid with temperatures meaning I was put on a lot of anti-biotics trying to get rid of whatever infection I'd picked up. Even more than that I started to develop Graft vs. Host of the Skin and Gut and which had to be treated with steroids as well, so all in all its been a tough few weeks but the Doctor's are all really pleased and its good to finally get the diarrhoea sorted and I'm feeling a lot better than I went in, specially my appetite which is good news.
My family and friends have given me a lot of support and its really starting to seem like I'm getting out the other end of the transplant properly, especially when I get some more energy and start to put on some more weight.
Thursday, 25 June 2009
Friday, 19 June 2009
Day +42: Still no news
Today's been pretty rubbish, I've been sleeping all day really and hardly eaten anything, relying really on diet drinks. I've had some diarrhea, high temperatures, shivers, shakes, headaches, sickness.
All in all a pretty crap day and I'm getting pretty concerned the Doctor's cant find out what's wrong with me. I had to go down to the day area this afternoon to have this alternative drug, pentamadine as the pill equivilant is probably wouldn't be good for my kidneys and kidney functions still havent returned to normal yet. This alternative drug had to be given as a gas and it tasted nasty.
So they've said they'll monitor me over the weekend, they'd really like to get rid of me really since they're very short on beds but obviously until they know why I get these temperatures of over 39 they can't do that.
All in all a pretty crap day and I'm getting pretty concerned the Doctor's cant find out what's wrong with me. I had to go down to the day area this afternoon to have this alternative drug, pentamadine as the pill equivilant is probably wouldn't be good for my kidneys and kidney functions still havent returned to normal yet. This alternative drug had to be given as a gas and it tasted nasty.
So they've said they'll monitor me over the weekend, they'd really like to get rid of me really since they're very short on beds but obviously until they know why I get these temperatures of over 39 they can't do that.
Thursday, 18 June 2009
Day +41: After a few bad days
Well after a few days in Hospital of feeling pretty crap I've woken up today feeling a hell of a better. I was getting really concerned about the diarrhea, I've literally had it since I was discharged and they were close to sticking a camera up my arse to find out what was going on. Luckily it turns out that the magnesium tablets just don't agree with me and since I've stopped taking them I've been fine. This is doubly excellent because those tablets were bloody horrible.
I'm still running a fairly high temperature for some reason, yesterday I started getting headaches most of the day which paracetemol didn't really touch so I had to get on the Cocodamol. I've had them today as well but they seem to have calmed down for now. Another strange thing is that I've thrown-up after the last two lots of pills I've taken today, which is very unusual for me. Possibly because I've tried to take them on an empty stomach and now my stomach is slightly more normal it doesn't appreciate that.
After I get some blood results back, to check with I need a potassium top-up or not, I should be able to go out for a while and possibly stay at home tonight if I don't need any fluids or anything, which would be excellent. I've taken on-board some of the comments I've had on my last blog comment, I really do need to have somebody around, I can't be on my own at this stage being so tired all the time. I've moved in to my girlfriends place now but unfortunately she's just started a placement as a teaching assistant in a primary school back where her parents live so she's there during the week and only with me on the weekends. Still that's only for a few more weeks.
I'm still running a fairly high temperature for some reason, yesterday I started getting headaches most of the day which paracetemol didn't really touch so I had to get on the Cocodamol. I've had them today as well but they seem to have calmed down for now. Another strange thing is that I've thrown-up after the last two lots of pills I've taken today, which is very unusual for me. Possibly because I've tried to take them on an empty stomach and now my stomach is slightly more normal it doesn't appreciate that.
After I get some blood results back, to check with I need a potassium top-up or not, I should be able to go out for a while and possibly stay at home tonight if I don't need any fluids or anything, which would be excellent. I've taken on-board some of the comments I've had on my last blog comment, I really do need to have somebody around, I can't be on my own at this stage being so tired all the time. I've moved in to my girlfriends place now but unfortunately she's just started a placement as a teaching assistant in a primary school back where her parents live so she's there during the week and only with me on the weekends. Still that's only for a few more weeks.
Thursday, 11 June 2009
Day +34: Sorting out this virus
I've been taking the Ganciclovir at home now for over a week and its clear from the blood tests that the virus counts aren't going down. The good thing is this means no more doing the Ganciclovir at home and hooking myself up to that syringe driver for a couple of hours a day. The bad news is that I'm going to have to be admitted while I have this other drug called Phosgarnate, plus its pretty nasty stuff, after only a few doses its started to affect my kidney functions and it means I've got to have a lot of replacement fluids like magnesium and calcium. The Phosgarnate makes me pretty sick but its only temporary.
So I'm pretty gutted about that but at least it means getting rid of this virus at last and my Doctor says it should only be a few days of treatment. I'm hoping which the virus gone I'll start to get my appetite back some more, that's really what's concerning me at the moment, I'd hoped to be feeling a little better than this at this point. I mean I know I can't rush things and most people at this stage don't feel anywhere near as good as I've been over the last couple of weeks but its just frustrating not to be able to eat properly, stops me trying to get fit again really.
The last few days have been a bit of a struggle, being on my own at home, it's difficult to find the motivation to cook and all that after a while. Still I've seen a few friends over the last couple of days and I'm going to see a few more over the next few days so I'm looking forward to that. I think just being alone makes everything seem a lot worse, even though I've been through a lot worse than this already and felt a lot worse.
So I'm pretty gutted about that but at least it means getting rid of this virus at last and my Doctor says it should only be a few days of treatment. I'm hoping which the virus gone I'll start to get my appetite back some more, that's really what's concerning me at the moment, I'd hoped to be feeling a little better than this at this point. I mean I know I can't rush things and most people at this stage don't feel anywhere near as good as I've been over the last couple of weeks but its just frustrating not to be able to eat properly, stops me trying to get fit again really.
The last few days have been a bit of a struggle, being on my own at home, it's difficult to find the motivation to cook and all that after a while. Still I've seen a few friends over the last couple of days and I'm going to see a few more over the next few days so I'm looking forward to that. I think just being alone makes everything seem a lot worse, even though I've been through a lot worse than this already and felt a lot worse.
Wednesday, 3 June 2009
Day +26: Got my exam done!
Well yesterday was a bit of rough, and utterly pointless day, in hospital but they let me out at 9pm to come home so I could get a good nights sleep before my exam even though I had a load of medication to come home and do once I got back. Still I slept well and made my way to the exam, still a bit worried I was going to be stuck in a little room with loads of other people but as soon as I explained it to the envigilators they sorted it out and I was put in to a computer room with just one other person.
The exam itself went alright, it was kinda cobbled together from first year lecture slides and loosely based on the project we've been doing this year. Some of the questions weren't even in proper english... another victory for higher education. At least thats one less module I don't have to do next year, should make for a far easier year. I think my chances of getting a first rate degree have slipped thanks to this but I think I should get a good 2:1 and hopefully if its a high enough 2:1 I can have a review on my effort and get it bumped up to a first.
Well I'm in hospital tonight by the looks of things seeing I'm on this course of antibiotics I can't take at home, which is a shame but I don't think it'l be more than a day or so, I feel good in myself and the Doctor's definately know that so we'll see. Hopefully I'll get home for the weekend to see my family and some of my friends.
The exam itself went alright, it was kinda cobbled together from first year lecture slides and loosely based on the project we've been doing this year. Some of the questions weren't even in proper english... another victory for higher education. At least thats one less module I don't have to do next year, should make for a far easier year. I think my chances of getting a first rate degree have slipped thanks to this but I think I should get a good 2:1 and hopefully if its a high enough 2:1 I can have a review on my effort and get it bumped up to a first.
Well I'm in hospital tonight by the looks of things seeing I'm on this course of antibiotics I can't take at home, which is a shame but I don't think it'l be more than a day or so, I feel good in myself and the Doctor's definately know that so we'll see. Hopefully I'll get home for the weekend to see my family and some of my friends.
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